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photo from the post Memories In Our Hearts Forever |
A few months ago I shared a post about Baby Getty, the Getty Owl Foundation and Lullabies for Getty. Baby Getty is a sweet bay girl who was diagnosed with Spinal Muscular Atrophy Type 1 (SMA1). Her parents started a a foundation knowing that a cure may not be possible in Baby Getty's life time but that maybe one would be found one day or at the very least they can educate people about SMA.
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So, last month, Mama Getty posted Tell 5! She had the idea that if 5 people, told 5 people, who told 5 people... about SMA it would raise awareness of this horrendous genetic disorder. SMA, however, is one of the closest neurological diseases that can be treated IF the resources where made available. IF resources are available.
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and one who is a mother now...
and now... I'm telling you.
To learn more about SMA, Getty Owl Goundation or Baby Getty please go to http://gettyowl.com
