What I was surprised and admittedly saddened to find was a love story for a sweet baby named Getty who was diagnosed with Spinal Muscular Atrophy Type 1 (SMA1). She was born a day after my Jamba Mama and despite the despair I am sure her family feels at times and shares in her blog, the whole blog is just an amazing story of life and hope.
They have also started a foundation, Getty Owl Foundation, to help find a cure and help other families. The generosity they show is overwhelming.
All donations to GETTY OWL FOUNDATION will be used to support the charitable cause of GETTY OWL FOUNDATION and not baby Getty personally.
photo from the post Memories In Our Hearts Forever